Sunday, May 3, 2015

Head fog

After only getting less than 3 hours of sleep last night (this morning) I ended up having a pretty functional day. Accompanying my husband to the grocery store and got my lunches packed for the week. I started dinner in the slow cooker and then helped my daughter with some much needed guidance.
Then it was time to test my shoulder. Only one way to see how well my workouts have helped... I figured some bonding with my daughter over some archery way the best way to do both!
Problem with full days... Fatigue creeps in quickly and head fog can be painfully real.
It becomes debilitating to the point of just wanting to chill. Doesn't do well for a social life. But laying in a comfy bed, watching tv, and catching up on the news (or newsfeeds) is just what the Dr ordered!
Snuggling in shifts with everyone who stops by (kids & hubby) is an added bonus. Of coarse having a dog that doesn't want to leave your side is even sweeter.
Yep, I'm hoping I get a full nights rest. Cause tomorrow I've got a full day. I don't have time for head fog and I certainly don't have time for MS.
I'm Made Strong...

Friday, January 2, 2015

Gileyna roller coaster

The last couple months have been quite a ride. Over the last year, my Doctor has been monitoring my white blood cell count has a precaution to taking Gilenya. I have been taking it since 2008 during the FDA study and get my blood work every 3 months. This past year however, was when it really took a turn. The results has continued to fall lower and lower. Each time he would warn if they fell lower we would have to act... I would frown and hope for better results. I even researched online different ways to increase my white blood cell count, but it really didn't seem to matter. Every test the results seemed to get worse til the November test came through. All my numbers had been too low too long. And while some people on some forums argued that they could have gone lower (based on their experiences) my Doctor called it halts. He pulled me off my medication for a month and told me at the time that I might have to change medication and go to an injectable. I literally went to my car and cried.  I stopped taking my medication and my weight skyrocketed out of control over the past month. I gained 15 pounds! Beyond not cool! Yet I was eating healthy!!! I was still very fatigued but at the end of the month my white blood cell count had improved so much I didn't have to go on the injectable I could return to Gileyna. 

Starting taking it again.... Oh the fun! As my body is adjusting I bucking a nasty cold. It's basically a run of the mill chest cold. But the difference is I already have a decease that leaves me with a compromised immune system then add to it my medication, the perfect storm. Oh and it's flu season and I can't have a flu shot.... Ah, cough medicine and rest... Lots of rest.
Hoping my 2015 is a year of good health and happiness, but right now I am not off to the best start.