Allergies, MS- What's next?

Going to the Dr is a pain in the butt for any reason. Add having to list off the names of medications you take (and spell them), it becomes a 3 ring circus. What is that for? I have never heard of that? What is the dose? And my personal favorite- I can't find that in the system, could it be something different? I literally have a piece of paper that has my 7 prescriptions (and 2 as needed) written down. Then I have a drawer of "just in case" meds. Yes, that is truly a life of "Behind the Scenes". Every time something comes I fear the looks, the questions, the judgment. But I have been rather fortunate. Maybe its my attitude. I know shocker- right? I am quick to defer to the Dr anytime they want to recommend something. Case in point, my continued struggles with my chest, cough, sinuses. Going on week 5, following Dr.'s orders my husband woke me up after a night of pretty much no sleep, (at that point I had slept 30 minutes), to go get a chest x-ray. With pneumonia ruled out (thank God) the focus went back to my allergies. I swear, as the years have gone by I have become more and more sensitive to things, foods, pollen, etc. Having been to the allergy doctor and lit up like the 4th of July during testing, I really didn't want to just jump into shots. But after this past several weeks of misery, I'm over it. I just really hope that it will make a difference because I am not going to go through that only to be miserable. Wondering if I should call and just bite the bullet and start now? Or wait my "follow up" appointment at the end of the month and let them know, the meds were a total failure, I ended up at the Minute Clinic twice, and Urgent care once and a total of 7 prescriptions (1 the first visit, 2 the second, and 4 the 3rd) later, I am finally able to go the morning without a box of tissues or need a cough drop (or cough up phlegm- sorry). So while my cough syrup tastes like some sort of butterscotch rum "shot" mixture (glad I didn't go with the codeine one!!) I am glad I can work and not have people look at me as though HAZMAT might need to pay me a visit. -Maybe they should just to be on the safe side. Trust me I have sprayed enough Lysol at work that I am pretty sure I have napalmed every germ from here back to Pinellas. Can't be too careful. I guess my biggest issue is the shots... I was SO happy when I was able to stop taking shots for my MS. With muscle atrophy in my arms and legs, I am NOT looking forward to this. So yeah... For the record- I do NOT want anything NEXT! Well maybe to lost 10 pounds, but only if its healthy, I don't need to lose a 10lbs tumor and have that scare hang over me. Plus, I have enough scars! Unless I get a tummy tuck out of the deal- FORGET IT!! Hope you enjoy the little glances "Behind the scenes of MS" it isn't always pretty, but it's LIVING! And that's most important! Leave a comment, let me know your thoughts, experiences and what you have done to "get through"... Keep on being a warrior!

A tiny nap wouldn't be so bad...

Been a total battle lately. Health-wise I am what you would consider "a picture of good health". My MS is hanging on great! In "MS" circle talk, anyway.... Do we have a circle? Communities, Yes! But actual an circle? I'll continue...
 I have been trying to exercise every day. I set an alarm and say I'll exercise then! Only to hit snooze and tell myself it's a better idea to do it after work, less likely to injure myself! The work day ends and driving myself home seems to be the actual accomplishment. I actually feel relieved I made it into the driveway without adding an insurance claim to the route. Not because I'm a bad driver (reserve all comments- not that I really get any in the blog world- wonder why that is?) Anyway... I make it, and proceed to the house! With the Florida heat it has been tough this year. Seeking A/C shelter and rest is about the quickest move I'm making. AND my shoulder has been this constant source of pain since November but really kicked it into high gear in January. I mean really, are you suppose to be in pain just sleeping? Totally wrong!!! So I have spent much of my time going back and forth to Dr.s and physical therapy trying to get some kind of relief. My favorite statement... " well, you are already taking... (a medication FOR treating [name something associated with my MS] and that's a pretty high dose" Really? No kidding! I take that EVERY DAY because otherwise I wouldn't walked in here. I have taken it in climbing steps now since I was dx in 2004 [10 years mathematicians!]. Do you Mr. Medical genius know what happens to a person after several years of taking something? Yep, that's right! It doesn't work! Heck I took something that straight had me looking at throwing myself straight down a flight of stairs. I totally see how Robin Williams "happened". Very sad! So yeah, today, right now, this very minute, when asked on a form to describe my "health", I'm good. Ask me this afternoon, when my drugs have worn off and I have to drive home, and my daughter wants to do something "sports" related, and my husband thinks dinner should be on the table cause I managed to get home first, and my son needs my time for school (its open house after all), and the dogs are upset cause I am ignoring them, and the iguanas & bearded dragons are pacing because I walked into the room but didn't give the "proper" love the wanted (and they probably need fed too)... sure... I'm good. By neurology measures. No new lesions. But I am exhausted! So what measures should we go by when people ask?

We live in a world where its "weak" to be anything but "ok" or "good". And I am, health-wise. I am very grateful. I just think, there's nothing wrong with wanting a nap!